Connect with others who understand.

Sign up Log in
Resources
About MyHeartDiseaseTeam
Powered By
Real members of MyHeartDiseaseTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Does Anyone Have Cardiomyopathy With Pacemaker/defibrillator?

A MyHeartDiseaseTeam Member asked a question 💭
Moorhead, MN
August 6, 2019
View reactions
A MyHeartDiseaseTeam Member

EF is ejection fraction, a subjective measurement of how much of the blood in your heart is pumped out with each beat. “Normal” is around 60. You can live with much lower and feel ok. My EF is between 10 and 15, I am told.
ICD is an Implantable Cardiac Defibrillator. It sends a shock to the heart when needed to get it back into a normal rhythm. Mine is paired with a pacemaker in the same device which controls the rhythm of your heart.
HCM is Hypertrophic Cardiomyopathy, a heart condition where the walls of the heart thicken. It can decrease the amount of blood in the chamber, and causes stiffness of the heart muscle making pumping more difficult. It may be genetic but not necessarily so.
I hope I have these correct. All of these terms can be Googled for a better explanation. I hope this helps.

March 16, 2022
A MyHeartDiseaseTeam Member

I had a Medtronic CRT-D implanted one year ago. I have a 17% EF, and unfortunately it will not improve as there is too much damage to the left ventricle.

However, with this unit and I have to add, a strict healthy lifestyle, plenty of proper exercise, diet and rest I am doing extremely well considering my condition.

Some days I forget I have this in me and have this condition. I love life, friends and family too much to allow this to rattle my cage.

So, in summary it has made me physically and mentally feel better.

December 1, 2022
A MyHeartDiseaseTeam Member

Great job explaining it,
your correct on all things. Life is wonderful.

March 28, 2022
A MyHeartDiseaseTeam Member

I have cardiomyopathy. It was diagnosed as idiopathic as it did not fit any category. I also had a bundle branch blockage preventing the electrical signals from reaching the ventricles and my pulse rate dropped to 20 bpm and I was fainting all the time. My ejection fraction was as low as 30%. I was given a pacemaker and after 1 year the EF went to 20% and was told I had "pacemaker syndrome". They implanted a biventricular pacemaker and a defibrillator combined (ICD).
My EF then went to 36% and I feel better however because of the size and location of the ICD I developed "Thoracic outlet syndrome".
This is pressure on a nerve bundle caused by weakness in the thoracic muscles and compression caused by the placement of the ICD.
Still working on it and it is getting better with exercise and strengthening the muscles.

August 15, 2019
A MyHeartDiseaseTeam Member

My EF was 15 when I suffered Cardiac Arrest on March 30th. I saw my Cardiologist last week and after an Echo, she informed me my EF has risen to 35. She is very happy with what I'm doing and to keep it up.

August 30, 2022

Related content

View All

Inplanted Defibrillator

A MyHeartDiseaseTeam Member asked a question 💭
Sonora, CA

What Is Considered A Good Score On An Echo?

A MyHeartDiseaseTeam Member asked a question 💭
Brooklyn, NY

Does Anyone Have Cardiomyopathy With Left Bundle Block With Reduced Ejection Fraction?What Do You Take For Medication?

A MyHeartDiseaseTeam Member asked a question 💭
Malone, WI
Continue with Facebook
Continue with Google
By joining, you accept our Terms of Use, and acknowledge our collection, sharing, and use of your data in accordance with our Health Data Policy and Privacy policies.Your privacy is our priority Lock Icon
Already a Member? Log in