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Real members of MyHeartDiseaseTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Does Anyone Have Electric Interference From A Pacemaker Or ICD Lead On The Phrenic Nerve Causing Involuntary Twitching Of The Diaphragm

A MyHeartDiseaseTeam Member asked a question 💭
Toronto, ON

Mine is so bad at times I can watch my abdomen move in time with my heart beat

May 13, 2023
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A MyHeartDiseaseTeam Member

My phrenic nerve does act up especially when I eat and positions but I look at as what’s my alternative? I make it doable .

August 16, 2023
A MyHeartDiseaseTeam Member

I had thumping in my diaphram after I got the pacemaker defibrillator. I felt like a baby kicking me in my stomach. It scared me to death . The pacemaker clinic adjusted the settings and now I’m fine. No more thumping. I don’t even know it’s there anymore. And I’m feeling great

June 20, 2023
A MyHeartDiseaseTeam Member

Yes, Your Pacemaker representative needs to adjust it so you don't get those twitchings. One of your leads is close to a nerve and is setting it off.

May 27, 2023
A MyHeartDiseaseTeam Member

Yes I had the same thing was often and annoying
Went to my electrophysiooligst doc
He made adjustments and I no longer have that problem

May 19, 2023
A MyHeartDiseaseTeam Member

Yes, I have twitching off and on, ( not a lot) can be scary sometimes. At night if I lay on my left side, I have a little jerk sometimes 😞. Had an ICD since 2020 because of low EF.

December 20, 2023

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