Hello Mary670 I have what is called Constrictive Bronchiolitis Obleterations, Undifferenteated Connective Tissue Disease, pluse several other things. Along with that is COPD from the lung disease(1) which is that, emphsyma, and Asthma. I also have Pulmonary Hypertension and CHF The title to my book will be "Living with Chronic Disease with No Cure." I am just getting over with Pneumonia and was in the Hospital for a couple days.

Mary it really depends on where you live. I live in Michigan, it's the third slowest state for ssd procedures. It took me 18 months from the time I filed till I made it to the hearing stage. They kept denying my claim, had to hire a disability team. I was totally and permantly disabled according to the admistrative law judge. I have afib, bilateral peripheral neuropathy, have to use a cane at times two stent procedures and an ef at 58 which pulls my med card for driving a commercial vehicle. And they kept denying me. Good luck, don't be afraid of having to hire a disabilty team, I used Premier Disability Associate out of Minneapolis, MN they got a cut of my back payment so in reality I was never out any just out of what I got for 12 months I wasn't paid. God bless and take care.

Mary670 Keep us posted ok. I will keep you in my prayers. Don't let anything pass you by if it is positive and keep the drama and the negative at Bay. It is not a cure but it sure does help with the journey.

Mary 670

I have a husband, 7 grandson's, 5 granddaughter's, 1 each for two gre'sat grandkids. My life is busy and I also have 3 dogs and a wonderful husband. Life is good. There is no cure for what I have so I might as well make the best of a bad situation. I may not be able to do the things I used to do but I can do so much more. My family and my faith are what I live for. I want them to have fantastic memories to tell their children. I want to leave a legacy for them. My son's lost a brother and I lost a son my oldest in Nov 7 of 2020. we lost the Queen of the family that following year in April and an Aunt in August. Plus my Father and my older sister. My dad in 2016 is also an uncle and my best friend, In 2019 my oldest sister is also in Aug. So they are pretty protective and family orientated. I do have a brother and a younger sister still here. I will keep you in my prayers. If you have little ones around you get down to level and look at the world through their eyes it is incredible. Everything is new and beautiful and also you will never miss a thing.

Hello Mary I went on ssd in 2006 but I was already on long term disability through my work. I also had lawyers that helped get me on it. I was told in 2003 that I was dying from 2 different diseases that I have that have no cure. I don't think that they expected me to live this long. They didn't know much about it back then but over the years the doctors do know about it and I don't have to explain it to them anymore. Yeah for me. But now things have changed and I am in the tail end of things. I am also writing a book about my journey. I have kept a journal over the years for this very thing.