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Real members of MyHeartDiseaseTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Has Anyone In This Group Or Does Anyone In This Group Have Low Blood Platelets?

A MyHeartDiseaseTeam Member asked a question 💭
Edmore, MI

I've had low blood platelets all my life. In the beginning, my HIV doctor thought it had something to do with my HIV but after going through my medical chart and history that was ruled out since I had low platelets all the way back to when I had ear surgery when I was 5 years old. Now that I know I was born with a heart defect, I wonder if this is the cause.

July 20, 2024
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A MyHeartDiseaseTeam Member

Now that I'm learning of my heart issues, I am just wondering if the platelets will change after heart surgery.

July 22, 2024
A MyHeartDiseaseTeam Member

Xavier,
Just hoping things get better for you.

July 22, 2024
A MyHeartDiseaseTeam Member

The lowest I've been is 54 when I was in the hospital 🏥 for pneumonia.

July 21, 2024
A MyHeartDiseaseTeam Member

I have to get labs 💉🩸every 3 months to keep my HIV 🦠 in check. I've been undetectable for 16 years now, so it's impossible for me to pass it on to anyone even if I tried. Once I become DETECTABLE again, then medications 💊 will need to change. Right now I no longer take daily pills 💊. I started out with 23 pills 💊 4 times a day. As science 🧪 got better, and understanding of HIV 🦠 got better, less and less pills 💊 to take. Now I just get 1 shot 💉 every other month.
In the beginning the doctor 👨‍⚕️🩺🥼 thought my platelets were low because of the HIV 🦠 or the meds 💊 but after reviewing my medical 🩻⚕️chart, saw they been low all my life 🧬. Many test have been done, nothing 🚫 has came back abnormal. So nobody knows why they are so low. Now that I have this heart ❤️ issue going on, I'm thinking 🤔💭 it may be the reason, so I'm going to ask at my appointment this Thursday 📆

July 21, 2024
A MyHeartDiseaseTeam Member

As you can see from my labs done this past Wednesday maybe it was Thursday, I'm sitting at 84 for platelets. I've NEVER been above 95 since I was 5 years old.

July 21, 2024

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