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Real members of MyHeartDiseaseTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Has Anyone In This Group Or Does Anyone In This Group Have Low Blood Platelets?

A MyHeartDiseaseTeam Member asked a question πŸ’­
Edmore, MI

I've had low blood platelets all my life. In the beginning, my HIV doctor thought it had something to do with my HIV but after going through my medical chart and history that was ruled out since I had low platelets all the way back to when I had ear surgery when I was 5 years old. Now that I know I was born with a heart defect, I wonder if this is the cause.

July 20
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A MyHeartDiseaseTeam Member

Now that I'm learning of my heart issues, I am just wondering if the platelets will change after heart surgery.

July 22
A MyHeartDiseaseTeam Member

Xavier,
Just hoping things get better for you.

July 22
A MyHeartDiseaseTeam Member

The lowest I've been is 54 when I was in the hospital πŸ₯ for pneumonia.

July 21
A MyHeartDiseaseTeam Member

I have to get labs πŸ’‰πŸ©Έevery 3 months to keep my HIV 🦠 in check. I've been undetectable for 16 years now, so it's impossible for me to pass it on to anyone even if I tried. Once I become DETECTABLE again, then medications πŸ’Š will need to change. Right now I no longer take daily pills πŸ’Š. I started out with 23 pills πŸ’Š 4 times a day. As science πŸ§ͺ got better, and understanding of HIV 🦠 got better, less and less pills πŸ’Š to take. Now I just get 1 shot πŸ’‰ every other month.
In the beginning the doctor πŸ‘¨β€βš•οΈπŸ©ΊπŸ₯Ό thought my platelets were low because of the HIV 🦠 or the meds πŸ’Š but after reviewing my medical πŸ©»βš•οΈchart, saw they been low all my life 🧬. Many test have been done, nothing 🚫 has came back abnormal. So nobody knows why they are so low. Now that I have this heart ❀️ issue going on, I'm thinking πŸ€”πŸ’­ it may be the reason, so I'm going to ask at my appointment this Thursday πŸ“†

July 21
A MyHeartDiseaseTeam Member

As you can see from my labs done this past Wednesday maybe it was Thursday, I'm sitting at 84 for platelets. I've NEVER been above 95 since I was 5 years old.

July 21

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