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I Don't Quite Understand "heart Failure".

A MyHeartDiseaseTeam Member asked a question 💭
Millerton, NY

I was diagnosed with heart failure for the first time almost a year ago but probably had it long before it was diagnosed. After seeing an inept cardiologist for about four years, I changed doctors; the new one ordered a pacemaker, got it July 29, new type, in heart. Started retaining water; Aug. 29 in E.R. for heart failure. Put n all kinds of diuretics, etc., less than two weeks later completely dehydrated, kidney failure. (I had stage 4 already). Lost 60 pounds since then, got my meds cut… read more

July 26, 2023
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A MyHeartDiseaseTeam Member

Portia, This is very serious, but I have had to laugh at your post!😂You have my prayers dear, but I'm pretty darned sure you are going to come through this okay. You have an awesome sense of humor and you've managed to survive all of that as have most of us(and we still are) so I've no doubt you will make it. You are a survivor...not a quitter! Please do let us hear back from you as soon as possible. P.S. I survived 5 bypasses(yes, all at once). You can too! Hugs friend!

August 26, 2023
A MyHeartDiseaseTeam Member

I would wonder if changing cardiac doctors was smart LOL I'm sorry it just seemed like everything happened after you changed doctors

But you know what I did the same thing where my doctor pulled out on me and sent me to another doctor the previous doctor was telling me we're good we're steaming along everything's fine good EF number you know perfect good keep going you know cut back on your greasy stuff quit smoking and you got a long life ahead of you it's great she quits retires and moves to go be with her grandchildren and they send me to a new cardiologist and this guy is like oh my God you're about to die

You're 95% blocked in all three arteries
And he says it's going to get worse probably quickly and it seems like they're just dragging everything out there taking their sweet little time getting to my surgery they didn't voice any urgency about anything they seem like it was no big deal until I talk to the surgeon the second time and then he was like we need to schedule this surgery and keep in mind it may take 30 days from the point of scheduling it to getting the surgery well if it's so urgent why are they dragging their feet about everything I wish somebody would just tell me the dog on the whole story and the truth in one sitting and not make it a puzzle where you have to pull all these pieces in and figure it out for yourself that's what I feel like they've done to you nobody's just giving you the whole picture it's just pieces what does it really mean
Hugs to you I hope you have a better day

July 28, 2023
A MyHeartDiseaseTeam Member

"What is the best definition of heart failure?
Heart failure, also known as congestive heart failure, is a condition that develops when your heart doesn't pump enough blood for your body's needs. This can happen if your heart can't fill up with enough blood. It can also happen when your heart is too weak to pump properly." God bless Judith!

July 27, 2023
A MyHeartDiseaseTeam Member

@A MyHeartDiseaseTeam Member...you are so right...why wait so long. When I had the cath that diagnosed my blockages ; on coming to, my doctor was standing beside me saying I can't let you go home. I'm admitting you and the surgeon will see you this evening. The surgeon came in and told me he had two surgeries ahead of me and I would be # 3. That was on Friday, I was transferred to the hospital where heart surgery is done on Monday and had surgery early Tuesday morning. I would just point blank ask what the hell is going on!

July 28, 2023
A MyHeartDiseaseTeam Member

@A MyHeartDiseaseTeam Member,
5 tips for exercising with heart failure
1. Don't overexert yourself
It can be helpful to use the Borg scale, a way to think about how much you are exerting yourself.

0 is sitting down doing nothing, and 10 is exhaustion – we say stick to ‘moderate intensity’, so somewhere in the middle where you’re feeling a bit warmer, you’re breathing a bit more heavily but you’re still able to talk while exercising.

2. Warm up and cool down before and after exercise
A slow cool-down is particularly important. We don’t recommend lying down straight after exercise. If you’ve exercised standing up, do some stretches; if you’ve exercised while sitting, do some gentle toe tapping, to allow your heart rate to come down gradually.

3. Try exercising little and often
Standard guidance suggests you should do 150 minutes of moderate intensity physical activity a week, but this can be spread out. You could do a few 5-10 minutes sessions over the course of a day and some activity is better than none.”

4. Pace yourself day to day
You’ll have good and bad days. Listen to your body if you need more of a rest that day. Equally, if you’re having a great day, don’t fall into the trap of doing too much, because you’ll wipe yourself out for the next few days.

5. Find a time of day that works best for you
Some people have less energy at night, others find getting ready for the day takes a lot out of them and need to rest a bit before exercising.

July 20

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